Retinitis Pigmentosa (RP) <\/a>is one of the most common causes of severe visual impairment. It is common to use the abbreviation RP. In Norway, it is estimated that the target group consists of around 1,500 people, although there is no official register. A significant proportion of the users of the services at Eikholt National Resource Centre for Deafblindness belong to this group. This is partly due to the fact that the diagnosis Usher syndrome<\/a> that include the visual diagnosis RP account for over 60 % of users.<\/p>\n\n\n\n Among people under the age of 70, those with RP are a large and important user group of the services at Hurdal Vision and Coping Centre, which is run by the Norwegian Association of the Blind.<\/p>\n\n\n\n The aim of the Retinitis Pigmentosa project, hereafter referred to as the RP Project, was to identify which measures are used to optimise visual function in people with RP. During the project period, we developed knowledge by testing some of these measures in collaboration with project participants with RP at different stages.<\/p>\n\n\n\n The measures addressed typical challenges associated with RP, including:<\/strong><\/p>\n\n\n\n Another important part of the RP project was the methodological implementation, which aimed to give the participants the opportunity to learn about and gain deeper insight into their own visual impairment. The participants felt that the project increased their self-understanding and strengthened the project by adding valuable knowledge from their experiences with the various measures.<\/p>\n\n\n\n In a collaboration between Eikholt National Resource Centre for the Deafblind<\/a>, Hurdal vision and coping centre<\/a> and Retinitis Pigmentosa Association <\/a> 12 good candidates were recruited to the project. These were 6 women and 6 men. They were evenly distributed from 33 to 68 years of age. <\/p>\n\n\n\n Since the project was mainly based on qualitative data, participants were chosen who were good at communicating their experiences and who, in dialogue with the project staff, could provide valuable feedback on each focus area.<\/p>\n\n\n\n In the videos below you will find 9 video presentations. Part 1 gives you a presentation of the project and its purpose. Part 2 deals with Retinitis Pigmentosa - what it is and about RP in Norway. This is followed by presentations on initiatives and experiences from the various project participants. The videos can be viewed as a series or individually. They have speech, text and Norwegian sign language.<\/p>\n\n\n\n In this video, you get an introduction to the project \"Optimising visual function in people with Retinitis Pigmentosa (RP)\" by Rolf Lund, Researcher at Eikholt National Resource Centre for Deafblindness.<\/p>\n\n\n\nObjectives of the RP project<\/h2>\n\n\n\n
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Recruitment of participants for the RP project<\/h3>\n\n\n\n
Video presentations of measures and experiences from the RP project<\/h2>\n\n\n\n
Part 1: Introduction to the project<\/h3>\n\n\n\n